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Karen Wesley's avatar

The medication battle can be brutal. I have witnessed many sides of it. Both autistic sons are on an antipsychotic along with lithium, mostly because of agitation, and depression. My youngest also takes gabapentin to help with anxiety and sleep. Two years ago, he gradually titrated off of abilify because of weight gain and shit hit the fan. He suddenly dropped out of all classes. He was angry and resented me and his father because he needed us financially. He became aggressive and had suicidal ideation.

His doctors made lots of tweaks that made things worse. He fired 3 different doctors. Finally he did his own research and decided to go back to abilify. To me, he does seemed supressed. I see very little joy or laughter. I don't like it. Neither does he, but he's afraid to make any drastic changes. He's not truly bipolar. He has no extreme highs from mania. He never has. It's all so confusing. I hate it!

I am happy that he is making his own decisions and advocating for himself with his current doctor. He's working as a Mental Health Peer Specialist because of his lived experience. He's stable. He has such a beautiful mind. He is one of my greatest joys.

I've had my personal battles with meds as well.

I am fascinated by your story. Thank you for sharing. I am so happy to read about your progress in the past few months. Keep writing!

Maybe we should collaborate on something.

Much love, Karen

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Rachel Leeke Alexis's avatar

I battled the stigma within myself of taking medication while in crisis during grad school. The shame and secrecy felt like an added weight on top of the spiral I was already in. It felt like I was admitting defeat and made me think of myself as weak. I eventually saw it for exactly what it was - a tool to buoy me to wellbeing. Nothing more, nothing less. There's courage in owning and naming things for what they are. As always, thank you for your vulnerability and willingness to share. I have no doubt your candor is saving lives.

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